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Asociación Nacional de Hipertensión Pulmonar

Pulmonary arterial hypertension

Research on pulmonary arterial hypertension in Spain

Pulmonary arterial hypertension is a rare disorder with a double consequence: increased pulmonary artery pressure and right ventricular failure. The Air Liquide Foundation supports the Spanish research project of the Asociación Nacional de Hipertensión Pulmonar on this disease.

The goal of the research

The research carried out by the Spanish association is aimed at understanding the genetic factor behind the development of Pulmonary Arterial Hypertension or PAH. This kind of hereditary PAH comes from a genetic mutation. A family history has been identified in 6% of patients. The mortality rate is 10% to 20%.

Project Objectives :

  • Being able to better and earlier diagnose hereditary PAH.
  • Following up patients as soon as the genetic mutations leading to this syndrome are detected.
  • Strengthening cooperation between doctors, researchers and patients.
  • Supporting families with a psychologist and a social worker during the difficult stages of the disease.

5 Spanish hospitals, 200 patients and their family are participating in the research program.

The Air Liquide Foundation participation

The funding of the Air Liquide Foundation has been used to buy testing equipment for blood samples and to pay researchers.

Asociación Nacional de Hipertensión Pulmonar

The Asociación Nacional de Hipertensión Pulmonar (website in spanish), founded in 2005, is recognized of public utility in Spain. Its work consists in advancing the diagnosis of pulmonary arterial hypertension and limiting the negative consequences of this disease. Miniplug: Research on pulmonary arterial hypertension in Spain.

PROJECT IDENTITY

  • Project initiator: Asociación Nacional de Hipertensión Pulmonar
  • Location: Spain
  • Year of support: 2013
  • R&D Manager: Marc Lemaire, Air Liquide Santé International